A face for Picasso : coming of age with Crouzon syndrome
by Henley, Ariel, 1992- (Author)
Summary
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons w... Full description
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